Living with Urologic Issues

my husband was 37 had a chronic back ache.he loved to work, but the pain eventually effected his sleeping and the only health problem previous to that.kidney stone in his early 20s. after his first endoscope and colonoscopy searching for the culprit he became very ill.bedridden and loosing weight not eating,diarreha, chills and close to death at times.they checked for everything from aids to TB. nothing, couldnt find stones either.

the pain goes on.the doctors acted like we were drug seekers,we returned to ER freqeuntly.after more than a yr. we applied for disability, he wasnt getting better and heavily drugged.and sent off to phyciatrist and many specialists finding nothing.blaming minute kidney stones then comes another colonoscopy and more tragic behavior, eventually loosing the ability to urinate on his own.heart cath shows nothing exept mitrovalve prolaps. no big deal.then permanant urinary caths for amonth or so at a time, then he learned to cath on his own.and currntly doing this 2-3 times a day.depression and all that goes with it and pain meds hes failing slowly.

there were more colonscopys thru 2005 to current.and im researching medical records for answers. now that they have exposed the fleets phospho ordeal. and i feel like we found the culprit but doctors blow us off. my husband went thru interstem implants twice. they would work and then stop. because the second one magnitized to the first one. they were to close.we had them removed. he doesnt want dialysis. hes been thru so much. i keep him hanging on cause i cant give up.were 43 now with 3 grandchildren and more to come.i feel like theres tests that havent been done and with science i keep hoping.