Living with Peyronie's Disease

I am hoping that by writing what is going on with me will help others with the same problem.

First things first - This is a problem that is quite embarassing - no one wants to be known as the guy with the crooked or weird penis. No one wants their sex life interupted. and no one wants to talk about it.

Some don’t know the right words, so what -
Some don’t know who to go to, I think that this is what this site is for.
Some are afraid it was “caught” - as far as I know, it is not an STD but then I am not a doctor.

This is my story and will be in several entries, as I go through this problem. I am not a doctor, these are my questions, concerns, fears, etc. I offer no solutions, probably only more questions.

I started having problems probably back in 2004 or so. At first I thought it was the result of some heavy meds I take as I also have Fibromyalgia. But for some strange reason, whenever I would have an erection, the end of the penis (tip) would hurt. Like something pulling on it actually.

One day while just taking an easy, sexual afternoon, my wife was stroking my penis and asked why it was bent in half. Well that was the first for me. I didn’t know. I assumed it was the meds for no other reason that I was taking such high potent ones.

I eventually met with my Urologist for my annual appointment. While chatting in the Fibro for men I had mentioned this problem and someone suggested PD, so I was not too taken aback when Oscar mentioned that it was but “we don’t do anything right now.” So I went home and took Vitamin D.
Well things got worse, a lot worse.
Sexual intercourse was now impossible as my penis was at a 90 to 120 degree bend. The harder the erection, the more severe the bend. Below the bend (or closer to the body) very hard but towards the tip, not so hard. Quite floppy actually
Ejaculation hurt, pure and simple. Since i am not one of those who are into Pain and Sex together, i did not like the result.

So I go back to see my Uro. Let me first tell you that my Uro and I are personal friends first. I used to be his ballroom dance instructor. We talk about everything and are not embarassed to do so.

Now the degree of bend is quite different from the first meeting. I brought my wife with me to discuss the problem as it does involve her. I want us both informed.

He goes on to say that it is much worse, not better as expected. His experience with topical lotions etc has not proved too beneficial for those afflicted. It is time to talk surgery.

I am the type of person who like others to feel that I am always in control. I know what they are talking about, what the results should be - totally business in nature. I have to admit I am scared s***less! The only thing that has me under control are the meds I take for my FMS.

I knew we would be talking surgery. But I also knew that since so few men are affected by this disease, their would be few doctors who knew the surgery involved. I was right. Even though my area has a very good medical practice, not too many have experience in PD surgery.

I was lucky. I only go to those doctors who are good and my Uro knows one of the best - a doctor in Boston.

I called, got an appointment and now wait for it.

Why does one have to wait so long for an appointment. I suppose that part of it is so that the problem may clear up of its own. But now I have to wait two (2) months until I see him.

So this is where I stand now - I have checked out this Dr in Boston. I wait.

My wife and I are off to a much needed vacation. A cruise to the Western Carribean, but my mind will be elsewhere

In the meantime, sexual satisfaction for my wife will come in the form of holding, kissing, carressing. Her climaxes will be the result of oral sex (Good thing I like to do that to her LOL)

I will probably write one more time before the meeting with this Dr. Then update as to what goes on then.

Hopefully by writing this down, I help you and I expecially help me.

Any questions or comments or suggestions (please no snake oil) Please let me know

Rich