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Living with Interstitial Cystitis

This section is a place to share stories about Living with Interstitial Cystitis

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The long haul
by: Cathy on Fri, Jan 09 2009
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I was diagnosed with IC 2 years ago. I have been dealing with the symptoms for about 9 years. I’ve had 10 surgeries and too many pills since I was diagnosed. I now have a urostomy bag, not happy about it, but the pain has decreased some. I’ve gone from feeling hopeless and praying I wouldn’t wake up in the morning because I was in so much pain, to being able to make it through the day with a little less pain.

I have a wonderful doctor who has listened to me through this whole experience. I think I’ve had a better experience because of my doctor (and nurse practitioner), and I hope other people will get a doctor who specializes in IC and really get some help.
I’m hoping someday to be able to get reconnected to my bladder, or getting a new bladder made out of my intestine. Hopefully someone will find a cure, and all of us out there who are suffering, will finally get some relief!
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  1. Wed, Jan 14 2009
    I AM PRAYING FOR YOU....Read

January 2009

  • Whats IC, never heard of it? I hear that question all the time - by Lateisha - (Fri, Jan 30 2009)
    Some nights I cant go to sleep I cant stop running to the bathroom to release my bladder and during the day I fear my insides down there are going to flare up and feel like I’m on fire. [more..]
  • No More IC For Me!!! - by Mandy - (Mon, Jan 26 2009)
    I am 33 years old. I am a single mother of one. My son is now 9. I was diagnosed with IC in November 2003. [more..]
  • Frustrated and Confused - by Pat - (Mon, Jan 19 2009)
    I started having problems after my second bladder surgery for incontinence. I went back to my urologist and he became very defensive when I tried to explain my symptoms to him. He said “You were having bladder spasms before you had surgery, this is not my fault”. [more..]
  • The long haul - by Cathy - (Fri, Jan 09 2009)
    I was diagnosed with IC 2 years ago. I have been dealing with the symptoms for about 9 years. I’ve had 10 surgeries and too many pills since I was diagnosed. I now have a urostomy bag, not happy about it, but the pain has [more..]

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