Living with Interstitial Cystitis

It began after a Myrtle Beach family vacation, 8 years ago. I thought it was kidney infection, as I often had growing up. The antibiotics didn’t relieve it, after 2 months of getting worse was sent to a Urologist who listen and read what they have done. During all this I had already eliminated the foods and drink that made me feel worse. Again more antibiotic’s no relief. He then did a scope which the numbing solution was of no help. It showed evidence of I.C.

Started on the medications, my bladder decided it had enough and pain was unbearable, hospital stay. I was going crazy, my body is allergic to alot of pain medication’s. Which I never be a drug addict but then I couldn’t get relief of the pain. Went to a I.C. specialist. He did a bladder distension and confirmed I.C. and told me the truth of what I could expect. It wasn’t easy by no means, but my family has been my support system.

I explain my pain like this, riding a boys bike and falling onto the bar. That is my pain level daily 24/7, a level 4. I still go to work, if I didn’t I wouldn’t have health care. I pray daily that all of us would one day I.C. free. Elmiron, Atarax, and Elavil is what I take daily and DMSO treatments now every 6 or 8 months. I miss alot of the foods I use to eat, but I keep hoping maybe one day. I allergic to the spasm medication, so the increased my Elavil, hope it works. If I have a pity party I feel worse, so I don’t do that. Life is but a whisper in time, how we choose to live it is ours.