Living with Interstitial Cystitis

I just want to thank those who responded and with the words of encouragement it did help a little, I did alot of research when I was first diagnosed, my family calls me the queen of research =) I am doing everything that I am suppose to be doing the diet the meds you name it I am and have been doing it, the light streching, it just seems that nothing is working.

I mean honestly yes there are days I really do want to give up I am not going to lie, it is just so hard when you look around and see that the little things that you would take for granted become most important to you like today my kids got to go out and spend there allowance that they earned and I could not go because the pain is just so bad and the fact that i am in the bathroom every may 5 10 minutes, I know it sounds silly to some people but that is a really big deal to me. I am missing out on alot of little things that I just always assumed would be there, then I tend to overthink Halloween is coming up am I going to be able to go out with them, again it is the little things.

I just wish there was a light at the end of the tunnel you know Just some kind of relief, I just want to be normal again. Be able to live my life the way that I want to and not live the way my body wants to. It just seems so hard, I am trying so hard to stay strong for myself and my family but it is becoming a real challenge lately. I don’t know Maybe someday I will be able to see the light. Well it looks like I complained more than I wanted to, it is just nice to know that I am not alone that there are people out there that do know what I am going through, you tend to feel so lonely when no one around you really knows what your body is doing to you.

So again thank you to those who responded it did help me, you guys will stay in my mind and heart (again it is the little things that affect you the most) and just those little words of encouragement made a difference. so thank you