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Living with Interstitial Cystitis

This section is a place to share stories about Living with Interstitial Cystitis

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Carlene’s Story
by: Carlene C. on Thu, Sep 18 2008
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Hello, I have had IC for 30 years now, it took the doctor along time to find out what it was. I have tried just about everything. At this time I am on Elirmon100mg. 3 times a day, I have alot of back pain and pelvic pain also, it gets better then worse again, I am going to a new doctor soon, my other doctor doesn’t seem to be educated in my problem, for me it is very frustrating, working everyday like this is hard,I am now trying herbal vitamins to see if they will work. In the last 30 years I have seen alot of doctors but they seem to all say the same thing, there is no cure as of yet, maybe someday there will be.So if anyone has any ideas on how to make it easier just email me. Sincerely Carlene Cruz
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September 2008

  • Just want to give up =( - by Jenn - (Mon, Sep 29 2008)
    So I am 25 and was diagnosed with IC in March I have had these symptoms for three years my gyno thought for the last three years that it was my cervix hanging low because I had three children. Well that was not the case, I had the surgery in March to determine whether or not I did in fact have IC and low and behold I did. [more..]
  • my life with ic - by asc - (Mon, Sep 22 2008)
    I just found out I have IC My life has been bad, the doctor I went to does not listen to me, I am in so much pain,, so much pain,.. [more..]
  • How I dealt with IC - by Jennifer - (Thu, Sep 18 2008)
    After having IC for 8 years and doing everything that the doc told me to do, and taking all of the pain meds. Which by the way was the only thing that actually did help (which is sad to admit). I finally decided to do something a little out of my ordinary. I decided to try an herbal remedy that was suggested to me. [more..]
  • Carlene’s Story - by Carlene C. - (Thu, Sep 18 2008)
    Hello, I have had IC for 30 years now, it took the doctor along time to find out what it was. I have tried just about everything. [more..]
  • My IC Relief Story - by Shanna - (Wed, Sep 03 2008)
    Hello, I am 30 years old and was diagnosed with IC in 2001. [more..]

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