Living with Interstitial CystitisThis section is a place to share stories about Living with Interstitial Cystitis Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Do I really have to live like this the rest of my life??? 
Hi I am a 25 years old and It has been almost a year now that I was diagnosed with IC For about two years I had pain during intercourse. I didn’t really think much of it because it wasn’t that bad. I started working for an OB-GYN clinic last August. I wasn’t used to working normal 8-5 hours I had always worked 3-11. I was drinking coffee like it was going out of style. I started getting terrible pelvic pain and low back pain I also felt like I had a UTI because of the pelvic pressure and the constant need to urinate. I was treated a couple times for infection. The cultures came back normal showing no UTI My symptoms were getting so severe where I was leaving work because I was always in so much pain. Of course I had a thorough work up beings I worked in the gyns office. They found nothing. I dealt with this for a couple months. I thought I was crazy and it was just in my head. Finally one day a girl in my office told me to read some info on IC All of the symptoms fit. I immediately made an appt. with a urologist Two weeks later I underwent Cysto with hydro distention. Sure enough that was it. My pain and symptoms worsened over the next few months. I have been on elmiron since the day of the surgery. I don’t feel like it works! I had 8 DMSO treatments and felt some relief. Now I don’t feel like anything helps. I am also experiencing extreme vaginal(vulvar) discomfort I have had this for 10 months now. They have diagnosed it as vestibulitis. Is this related to the IC? I can’t seem to get a straight answer from the doctors I work with or even the specialist from Denver Co. that I recently met with. I don’t understand how this is fair. Why do I have to live like this everyday. I just want to be normal again. My husband and I have had intercourse about 7 times in the last year. It hurts so bad I have cried during it. I feel bad for my husband he is only 23! I feel depressed and hopeless. It doesn’t seem like anyone really understands what I am going through. Please give me some suggestions
August 2008
|
|
Archives:
The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer) |
email this
