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Living with Interstitial Cystitis

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living with interstitial cystitis
by: CLT on Sun, Aug 10 2008
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HI I’M A 28 WITE FEMALE,WHO HAS BEEN LIVING WITH INTERSTITIAL CYSTITIS FOR ABOUT THREE YEARS NOW.IT HAS BEEN VERY HARD ON ME.I’M IN CONSTANT CHRONIC PAIN IN THE BLADDER,KIDNEYS AND MY VAGINA AND ABDOMEN.I HAVE EXPERIENCED EXTREME WEIGHT LOSS AND MUSCLE MASS.I DO NOT KNOW IF THIS IS THE CAUSE OF MY DISEASE OR NOT.I WOULD LIKE TO KNOW THAT IT WAS.

I FEEL LIKE I’M DYING OF CANCER EVERYDAY,ALTHOUGH I KNOW I’M NOT IT FEELS LIKE I AM.I HAVE CONSTANT NASEUA N VOMITING. PAIN ALL THROUGH MY BLADDER,ABDOMINAL WALLS,PAINFULL INTERCOURSE,AND MY KIDNEYS ARE ALWAYS HURTING ME.BURNING PAIN BEFORE,DURING AND AFTER URINATION,IT’S SO BAD I CRY WHILE I URINATE NOT ALWAYS BUT MOST OF THE TIME.CONSTANT URINATION SAY I GO EVERY 10-20 MIN A DAY,IT’S VERY FRUSTRATING TO ME I’M ALWAYS DEPRESSED,ANGRY,TIRED,FATIGUED,SAD,BODY FEELS OF SHUTTING DOWN SOMETIMES.

I SPEND MOST OF MY TIME BEDRIDDEN,I’M JUST NOT ABLE TO DO THE THINGS I NORMALY WOULD DO IN A NORMAL DAY.IT DESTROYED MY MARRIAGE.MY HUSBAND FELT I QUIT TAKING CARE OF HIM AND REALLY I WAS JUST TO SICK TO DO ANYTHING.THE INTERSTIAL CYSTITIS HAS AFFECTED MY LIFE MENTALLY AND PHYSICALLY.
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August 2008

  • Annette’s Journey - by Annette - (Mon, Aug 18 2008)
    I have Interstitial Cystitis. I have been diagnosed for over 18 years now. I live in constant pain that is called intractable. I suffer from major depression I lost my job December 6, 2006 after 30 years as a Medical Technologist. I called in and was late too many times not giving adequate time to find extra help. [more..]
  • cystitis in 5 year old boy - by vinit - (Mon, Aug 18 2008)
    my son use to hold urine for long in school when unbearable he wets his cloth during days But in night /at home he get up and go to loo.had some redness on phallus and shown to peadiatition [pediatrician] he asked some test like urine routine microscpy and usg abdomen and scrotum on usg it shows cystitis, other reports are normal. [more..]
  • Do I really have to live like this the rest of my life??? - by jn - (Wed, Aug 13 2008)
    Hi I am a 25 years old and It has been almost a year now that I was diagnosed with IC For about two years I had pain during intercourse. I didn’t really think much of it because it wasn’t that bad. I started working for an OB-GYN clinic last August. [more..]
  • living with interstitial cystitis - by CLT - (Sun, Aug 10 2008)
    HI I’M A 28 WITE FEMALE,WHO HAS BEEN LIVING WITH INTERSTITIAL CYSTITIS FOR ABOUT THREE YEARS NOW.IT HAS BEEN VERY HARD ON ME.I’M IN CONSTANT CHRONIC PAIN IN THE BLADDER,KIDNEYS AND MY VAGINA AND ABDOMEN.I HAVE EXPERIENCED EXTREME [more..]

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