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Living with Interstitial Cystitis

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How do you live with Interstitial Cystitis?
by: Lynne on Mon, Jul 07 2008
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I was diagnosed with Interstital Cystitis 3 months ago. I am in constant daily pain, I am on all the appropriate meds including catheterizing myself every time I urinate. The pain is excruciating in my bladder and my back. I have pain meds as well but they only help a little. I take 1 every 6 hours. I don’t sleep at night and have lost time at work. I cannot sit or stand for long. I follow the diet I found on line and dring distilled water because the lack of minerals in it is supposed to help you.
My doctor is wonderful. My problem is I cannot urinate. On July 9th I am having the test procedure where the place an electrode through your back to your nerves near your bladder. I have this for 10 days. If I feel better, then I get the Interstim Implant soon after, which is supposed to show an 80% improvement in symptoms. I’m going for it! I went on line to the site and they sent me info along with a free DVD showing me the entire procedure.
The thing is, is this is a liflong condition and I am so very depressed over it. I suffer from Depression anyway and I am just tearful all the time, motionless, uninterested in life, etc..of course I will see my counselor and continue to work on this.
How do you cope with this diagnosis?
Anyone have the implant?
Please, please help me! I’m desperate!
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Comments
  1. Mon, Jul 14 2008
    I had my test surgery for my implant surgery last Wednesday the 9th of July to have the wires inserted in my sacral nerve and I wear a beeper tp push ...Read
  2. Fri, Jul 11 2008
    Yah i went to see a urologist yesterday and hes gonna do another check up with me. I have tried Elmeron and the other types of oral meds and nothing h...Read
  3. Fri, Jul 11 2008
    The pain I was in was unreal and I wouldn't wish it on my worse enemy! I couldn't sit too long, stand too long, do anything too long. I was constant...Read
  4. Thu, Jul 10 2008
    Im so glad that u are gettin some kind of relief from that procedure u went through=) thats great. Thanx so much for the info and i hope it works so u...Read
  5. Thu, Jul 10 2008
    Yes, of course! Go onto Medtronics or Interstim Implant. I had my trial surgery yeaterday and I already feel better!!! I didn't catheter once tod...Read

July 2008

  • Living with Interstitial Cystitis - by Samantha - (Tue, Jul 22 2008)
    I was diagnosed with IC about a week ago. I have been suffering with the symptoms of this for about one year and I am just now finding out that I have IC [more..]
  • a long haul now bladder repair?? - by Janet - (Mon, Jul 21 2008)
    Over twenty years ago I was diagnosed with IC I was unable to urinate many times and had to run to the doctor to be catherized. The doctor tried a few things, nothing much helped. [more..]
  • Living with Interstitial Cystitis - by jamie k. - (Wed, Jul 09 2008)
    I was diagnosed with IC 4 6 years ago, and i am now 22 years old. It has been very hard to deal with the constant pain and suffering of this disease. [more..]
  • How do you live with Interstitial Cystitis? - by Lynne - (Mon, Jul 07 2008)
    I was diagnosed with Interstital Cystitis 3 months ago. I am in constant daily pain, I am on all the appropriate meds including catheterizing myself every time I urinate. [more..]

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