Living with Interstitial Cystitis

So I wrote my story last month and I was very angry that is actually an understatement I was diagnosed with IC and I felt like my life was over it really does take over a big part of your life, well I went back to the doctor after my surgery and he put me on elmiron amytriptiline and hydroxine, three pills I have to take everyday and one three times a day. That alone is frustrating, well I went back to the doctors after being on them for about 5 weeks and honestly there was a difference I did alot of research on this condition and between the diet and the pills it made a world of difference, but here is the kicker even my doctor says that he is quite amazed because the diet does not work for everyon.

Now I am not a patient person I am constantly on the go and I wait for noone and the road that was given to me requires me to have a LOT of patients becuase it is all about the process of elimination which is a very lengthy process, I now the MAJOR thing for me to stay away from was anything processed even it is minimal, I avoid it. I let this condition run me for 3 years and i won’t do it anymore like all of you I have good days and bad and when there bad they are VERY bad. Yes I will admit there are days especially if I eat something wrong or when I get my period I can barely move but what can you do but just wait for it to pass, you can’t dwell in it and let it control you, I wanted to give up I just wanted to stay and bed and just give up but I couldn’t

I have three wonderful kids who have been amazing through this whole process and have been very patient with me, and now I look at as if I am starting a new chapter in my life, Somthing that I am going to try and fight and control not the other way around, I am only 25 so I got a long way to go with this condition, and honestly I don’t see them finding a cure for this in my life time, so I will have to take these pills indefinte. but i am ok with that because it is helping, for all you out that are really struggling with the fact that you have, take your life back, try different things DON”T let this thing run you. Trust me I did at first it is not worth it going from pain to depression don’t add another problem to one that you aleady have. Hang in there.