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Living with Interstitial Cystitis

This section is a place to share stories about Living with Interstitial Cystitis

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MY STORY
by: CB on Thu, May 08 2008
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Reading all these stories is like I wrote them myself. I can relate to everything from pain to bion inplants. I have had it all done with nothing helping for more than a few months. I am 54 now and have had ic for 11 yrs. My two daughters also have it 24 and 28. At this point I just pray that they’ll come up with a cure in their lifetime. When the days are bad they are really bad. I wish the new stem cell research would come available soon. Keep the faith and try not let it destroy your life, which on bad days is easy to do.
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May 2008

  • marriage and IC - by jennifer - (Thu, May 22 2008)
    I am 24 years old and was diagnosed with IC at the age of 19 (although I have had problems with bladder pain for as far back as my mremory reaches, at least as young as six) [more..]
  • IC Ruined My Life in Less Than 2 Years - by Stacey - (Tue, May 20 2008)
    Reading these stories I have tears running down my face because I have been through so much like all of these poor people. I went through every “rule out” test known to mankind from barium enemas to cystoscopy with hydro-distension and so many drug trials I cannot tolerate them anymore. [more..]
  • Can’t let it control you - by Jennifer - (Tue, May 13 2008)
    So I wrote my story last month and I was very angry that is actually an understatement I was diagnosed with IC and I felt like my life was over it really does take over a big part of your life, [more..]
  • MY STORY - by CB - (Thu, May 08 2008)
    Reading all these stories is like I wrote them myself. I can relate to everything from pain to bion inplants. I have had it all done with nothing helping for more than a few months. [more..]
  • Don’t Give Up - by Dee - (Wed, May 07 2008)
    I am 58 yr old mother of two. I have had IC my entire life. Yes, it is frustrating, misunderstood, misdiagnosed and just plain painful. The best advice I can give anyone is too reduce use of refined sugar. [more..]

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