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Living with Interstitial Cystitis

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My life with Interstitial Cystitis (IC)
by: ella on Wed, Apr 30 2008
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Hi, my names Ella, I’m 16, and four months ago I was diagnosed with IC I didn’t even know what it was. I began needing to constantly go to the bathroom and feeling worried and nervous all the time, I was like this for five months before I was even diagnosed. After I found out what it was, I had surgery to stretch my bladder in hopes it would fill and hold for longer. It didn’t work for me.

I have now had IC for eight months and I am on medication that is suppose to reduce the nerves that cause spasms and the urgency to urinate. I have became a prisoner in my home, I don’t go out because I get so nervous and uncomfortable I feel like I’m busting all the time.

Having IC has changed my life. I find myself constantly thinking about where the toilet is and I just feel so uncomfortable when I’m out in public. Most times I feel like I need to go to the bathroom and I will even sit on the toilet and I just can’t go.

Having IC at this young age has made me question how my life is going to turn out. I’m reading all these other people’s stories about living with IC and most of them are in the 30’s 40’s, I haven’t even started my life. It is nice to know there are some people with this. I find it so hard to explain to other people really the way I see it unless someone has IC they could never understand.

The worst time for me while having IC was a month ago when I went back to my doctor and they told me I just had to deal with this, they said people have worse cases so I feel for those people out there that have worse cases then I do.

Now I’m hoping in the near future they will find a cure for people with IC but I hate living with it, well thank you for reading my story.
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  1. Thu, May 01 2008
    I read your post and I know how you feel. However, you must remember there are many effective treatments out there that do relieve symptoms. Some ta...Read

April 2008

  • My life with Interstitial Cystitis (IC) - by ella - (Wed, Apr 30 2008)
    Hi, my names Ella, I’m 16, and four months ago I was diagnosed with IC. I didn’t even know what it was. I began needing to constantly go to the bathroom and feeling worried and nervous all the time, I was like this for five months before I was even diagnosed [more..]
  • Newly diagnosed with Ic - by Roxanne - (Tue, Apr 29 2008)
    I am 41 and was just diagnosed with IC. I have had frequent UTI’s for years now and thought it was a result of my hysterectomy that I had to go through at the age of 25. [more..]
  • 41 and IC out of the blue? - by Kelly - (Thu, Apr 24 2008)
    I am 41 and had a few urinary tract infections over the last 20 years, nothing unusual. In Decemeber it felt like I had another UTI but the antibiotics didnt help. [more..]
  • Living with IC - by Mary G. - (Wed, Apr 16 2008)
    I have been diagnosed with IC for over a year and a half now.I pee every 20-30 minutes during the day and if I’m lucky I can go up to two hours at night. [more..]
  • Having IC - by Angie - (Wed, Apr 09 2008)
    I have read the other three stories posted and can relate so well to all of you. I am 29 years old and recently found out I had IC but not before being treated numerous times for UTIs and not feeling better and wondering why the antibiotics weren’t helping me. [more..]
  • it [interstitial cystitis] - by bernice - (Fri, Apr 04 2008)
    i have suffered with this for over 25 years,it is very tormenting, 20 yearrs ago i had my bladder stretched 3 times, it didn,t help i also had chemicals inserted into my bladder [more..]
  • A life with IC - by Noel - (Tue, Apr 01 2008)
    I am 19 years old and on January 8th I was dignosised with having IC. I have suffered with the symtoms for the past 4 years before I knew that it was IC. [more..]
  • 25 yrs old just recently diagnosed with IC - by Jenn - (Tue, Apr 01 2008)
    I am 25 years old and was just recently diagnosed with IC and I am PISSED I was dealing with pain for three years constantly having to go to the bathroom you typical signs and I to was misdiagnosed by my primary I was treated for uti’s at one time I actually had a kidney infection. [more..]

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