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Living with Interstitial Cystitis

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Newly diagnosed with Ic
by: Roxanne on Tue, Apr 29 2008
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I am 41 and was just diagnosed with IC I have had frequent UTI’s for years now and thought it was a result of my hysterectomy that I had to go through at the age of 25. My primary doctors kept telling me that my bladder was tipped because of not having a uterus to support it. Finally I go see a urologist and received the final blow!

Being diagnosed with this has mentally taken a toll on me. Who wants to live with a disease for which there is no cure. It’s bad enough that I had to have a hysto at 25 because of Endometriosis another disease for which there is not a cure. The toll of going through surgical menopause at the age of 25 and it NEVER STOPS is more than enough. Now this! I have frequent urges and when I have to go, I mean I HAVE TO GO! But the pelvic pain is the worst for me. Seems like I have endometriosis all over again.

Well, thanks for letting me vent. We must stick together to get through this thing! Afterall, it could be worse I suppose.
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April 2008

  • My life with Interstitial Cystitis (IC) - by ella - (Wed, Apr 30 2008)
    Hi, my names Ella, I’m 16, and four months ago I was diagnosed with IC I didn’t even know what it was. I began needing to constantly go to the bathroom and feeling worried and nervous all the time, I was like this for five months before I was even diagnosed [more..]
  • Newly diagnosed with Ic - by Roxanne - (Tue, Apr 29 2008)
    I am 41 and was just diagnosed with IC. I have had frequent UTI’s for years now and thought it was a result of my hysterectomy that I had to go through at the age of 25. [more..]
  • 41 and IC out of the blue? - by Kelly - (Thu, Apr 24 2008)
    I am 41 and had a few urinary tract infections over the last 20 years, nothing unusual. In Decemeber it felt like I had another UTI but the antibiotics didnt help. [more..]
  • Living with IC - by Mary G. - (Wed, Apr 16 2008)
    I have been diagnosed with IC for over a year and a half now.I pee every 20-30 minutes during the day and if I’m lucky I can go up to two hours at night. [more..]
  • Having IC - by Angie - (Wed, Apr 09 2008)
    I have read the other three stories posted and can relate so well to all of you. I am 29 years old and recently found out I had IC but not before being treated numerous times for UTIs and not feeling better and wondering why the antibiotics weren’t helping me. [more..]
  • it [interstitial cystitis] - by bernice - (Fri, Apr 04 2008)
    i have suffered with this for over 25 years,it is very tormenting, 20 yearrs ago i had my bladder stretched 3 times, it didn,t help i also had chemicals inserted into my bladder [more..]
  • A life with IC - by Noel - (Tue, Apr 01 2008)
    I am 19 years old and on January 8th I was dignosised with having IC. I have suffered with the symtoms for the past 4 years before I knew that it was IC. [more..]
  • 25 yrs old just recently diagnosed with IC - by Jenn - (Tue, Apr 01 2008)
    I am 25 years old and was just recently diagnosed with IC and I am PISSED I was dealing with pain for three years constantly having to go to the bathroom you typical signs and I to was misdiagnosed by my primary I was treated for uti’s at one time I actually had a kidney infection. [more..]

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