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Living with Interstitial Cystitis

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Having IC
by: Angie on Wed, Apr 09 2008
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I have read the other three stories posted and can relate so well to all of you. I am 29 years old and recently found out I had IC but not before being treated numerous times for UTIs and not feeling better and wondering why the antibiotics weren’t helping me. I had horrendous back and abdominal pain and groin pain in the past and after years of being misdiagnosed by doctors who said I had irritable bowel (my bowel was never irritable, I had normal bowels all the time) and pushing to keep seeing new doctors until I got the right answer I found out I had fibroids last June.

I took six months of Lupron shots to shrink my fibroids…..nothing like having hot flashes and night sweats and other menopause symptoms at 29! Thankfully they worked and my fibroids were small and my pain was gone…or so I thought. I started back to work as I had missed a lot from the pain and resigned from my job. I was good for about three weeks and the pain returned. I was speechless. I insisted that they check my fibroids after everything else was checked and was fine and my fibroids were still tiny.

I had never heard of IC but kept having to pee all the time and felt like I had a UTI again. Thankfully my hubby thought to contact a Urologist and get me in and he suspected IC. I read about it on the internet and couldn’t believe how much it was like me. I had the cystoscopy and sure enough he saw the bladder and said I had it. I am thankful to have the diagnosis but it sucks to know there’s no cure for this. I can’t remember the last time I had a good night’s sleep as I’m up all the time in the night from my pain from needing to pee. Also I’m very frustrated with the intimacy thing since it really hurts when I’m intimate with my hubby but I want to enjoy it. I try to stay positive that at least this is something I can live with but boy is it a challenge to live with at times!
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  1. Sat, May 03 2008
    I have been told I have ic but haven't had the scope to look at bladder. I will have that soon. I am scared to have it done. When I had my first child...Read

April 2008

  • My life with Interstitial Cystitis (IC) - by ella - (Wed, Apr 30 2008)
    Hi, my names Ella, I’m 16, and four months ago I was diagnosed with IC. I didn’t even know what it was. I began needing to constantly go to the bathroom and feeling worried and nervous all the time, I was like this for five months before I was even diagnosed [more..]
  • Newly diagnosed with Ic - by Roxanne - (Tue, Apr 29 2008)
    I am 41 and was just diagnosed with IC. I have had frequent UTI’s for years now and thought it was a result of my hysterectomy that I had to go through at the age of 25. [more..]
  • 41 and IC out of the blue? - by Kelly - (Thu, Apr 24 2008)
    I am 41 and had a few urinary tract infections over the last 20 years, nothing unusual. In Decemeber it felt like I had another UTI but the antibiotics didnt help. [more..]
  • Living with IC - by Mary G. - (Wed, Apr 16 2008)
    I have been diagnosed with IC for over a year and a half now.I pee every 20-30 minutes during the day and if I’m lucky I can go up to two hours at night. [more..]
  • Having IC - by Angie - (Wed, Apr 09 2008)
    I have read the other three stories posted and can relate so well to all of you. I am 29 years old and recently found out I had IC but not before being treated numerous times for UTIs and not feeling better and wondering why the antibiotics weren’t helping me. [more..]
  • it [interstitial cystitis] - by bernice - (Fri, Apr 04 2008)
    i have suffered with this for over 25 years,it is very tormenting, 20 yearrs ago i had my bladder stretched 3 times, it didn,t help i also had chemicals inserted into my bladder [more..]
  • A life with IC - by Noel - (Tue, Apr 01 2008)
    I am 19 years old and on January 8th I was dignosised with having IC. I have suffered with the symtoms for the past 4 years before I knew that it was IC. [more..]
  • 25 yrs old just recently diagnosed with IC - by Jenn - (Tue, Apr 01 2008)
    I am 25 years old and was just recently diagnosed with IC and I am PISSED I was dealing with pain for three years constantly having to go to the bathroom you typical signs and I to was misdiagnosed by my primary I was treated for uti’s at one time I actually had a kidney infection. [more..]

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