Living with Interstitial Cystitis

I am 25 years old and was just recently diagnosed with IC and I am PISSED I was dealing with pain for three years constantly having to go to the bathroom you typical signs and I to was misdiagnosed by my primary I was treated for uti’s at one time I actually had a kidney infection.

I went to my gyno and she did every test under the book I had exploratory surgery because they thought it was my cervix, they were actually going to do a hysterectomy on me I WAS ONLY 24 years old, before they took that step she did one more test one me because she had a hunch and her hunch paid off she recommended me to my urologist and my first visit he told me that he believed I had IC I had no idea what the hell it was never heard of it and next thing I know 2 weeks later I am lying on an operating table then finding out that I do infact have IC

It has affected so Much of my life I am a mother a three and Married to a wonderful man My intimate life with my husband came to a screeching halt for almost 5 months now because I am so afraid to do anything with him in fear on how much it is going to hurt. Words can not begin to explain how frustrated I am because No one around me understands the only way I can explain to my husband how it feels is by telling him I feel like I am being stabbed repeativily. Like most of you I have good days and I have bad days but the bad seems more frequent than the good. There are mornings I just don’t even want to get up.

I look at my kids and think of what I could be doing with them and there are days that I can not even pick up my son who is only 3 because it puts so much strain on me. I use to be able to pick my kids up and swing them around and horse around with them. I am so angry with this It ruins so much of your life. and what scares me more than anything is that I read it can be hereditary and that it is more common in girls than boys, I have two daughters and I fear for them I don’t want to see them go through what I am going through. well i am done venting thank you to anyone who reads this sometimes you just need to get stuff off your chest and what is funny I try to stay positive but it is just so hard. but again thank you for anyone who reads this.