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Living with Interstitial Cystitis

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Living with IC.
by: AMG on Mon, Mar 17 2008
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I am a 27yr old female that was diagnosed with IC 7 years ago. I have seen 8 different urologists,some at the best hospital’s in Boston that specialize in IC Some of them have been no help at all, and others very caring and understanding but have had limited options to offer me. I have tried so many different rx’s and procedure’s, none with great results. I tried Elmiron for 10 months with no results, and everything from detrol to elavil to antibiotics to help me, also with no results. I have been on oxycodone and pyridium for years and they help me work and get through the day, but sometimes the pain and discomfort I have is unbearble. I have many days when I end up sitting on the toilet for 20 minutes at a time just to be able to pee a little amount, other times I have a full badder every 15 minutes! I have cut all tomato sauce out of my diet and that has helped! I tried the DMSO treatments.. they made me have horrible flare-ups and I had all negative results from it.

I also tried accupucture and although it helped it was very expense and after a few months of weekly visits I stopped getting results.I have been thinking about trying them again. I find that the pain and symptoms come out of no where. It has caused such stress in my every day life because of it. I never realized how many people are affected by IC and how young some people that have it.

I am going to try postier tibial nerve stimulation.Has anyone tried this? I also have heard that untreated UTI’s can cause infertility. Does anyone know anything about that? Or if its true? I would appreciate anyone’s knowledge/ comments on this. Thank you.


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  1. Thu, Mar 27 2008
    Dear Lovely, Young IC Gal... I love that you mention a couple of your wonderful Life Blessings... You are far too young, and vibrant to be sufferin...Read

March 2008

  • botox and cystitis - by E - (Mon, Mar 31 2008)
    I had botox put into my bladder six months ago for I.C and it is the best thing i have ever done, i can now lead a normal life and am due my check up last day of march. [more..]
  • After 4 Yrs of IC Pain… - by Terri - (Thu, Mar 27 2008)
    And very poor support from Kaiser Permanente Urologists of Denver.. I finally hired one of Denver’s premiere “private” Urology Specialists to gain the proper IC diagnosis… Denver Kaiser Urologists didn’t care if I had an IC Diagnosis…! [more..]
  • Was healthy until … - by ddscrazy - (Wed, Mar 26 2008)
    I had a hysterectomy and then got a hernia from doing to much afterward.Had hernia repair with mesh in2005 thenin 2006 had to have mesh taken out,repair hernia again and another mesh put in, still havong prroblems with the mesh and now have been diagnosed with I.C. [more..]
  • Living with IC. - by AMG - (Mon, Mar 17 2008)
    I am a 27yr old female that was diagnosed with IC 7 years ago. I have seen 8 different urologists,some at the best hospital’s in Boston that specialize in IC. [more..]
  • IC - by VF - (Mon, Mar 17 2008)
    I was finally diagnosed with IC after years and years of being mis diagnosed. I am only 26 and it has taken over my life. Some days are good..some are bad and most of them are bad. [more..]
  • Not the fairytale begining… - by Elizabeth - (Wed, Mar 12 2008)
    I got married in October 2007 to an American soldier who had just spent his second tour in Afghanistan. While he was gone I was experiencing urgency and frequency as I have for the past ten years. In early January 2008 my symptoms became unbearable. [more..]
  • IC Headache - by Ebony - (Thu, Mar 06 2008)
    For the last few years I had been struggling with sharp painful abdomen pains and everytime I would go see my OB-GYN, he would run test and evrything always came back negative. So finally last year after he found a cyst on my ovary he did a laprascopy and notice adhesions. [more..]
  • HELP - by NANCY - (Wed, Mar 05 2008)
    I HAVE HAD IC FOR ABOUT 10 YEARS AND IT SEEMS THAT EACH DAY IT IS GETTING WORSE. I HAVE TRIED EVERY MEDICINE OUT THERE AND NOTHING SEEMS TO WORK. [more..]
  • Continuing symptoms Of cystitis - by Jennifer - (Wed, Mar 05 2008)
    I was diagnosed wtih intersitial cystitis when I was about 17, right after my son was born. I am now 36 y.o. I have had extreme, though less bouts of pain and each time all urinalysis show lack of infection, though blood in urine occurs occasionally. [more..]
  • IC and all ages - by Brooke - (Wed, Mar 05 2008)
    As i was reading these stories of other people having IC I realized many of you all are older with kids and all. I decided to write my story and show younger people they are not alone either. I am a 17 year old girl that has IC and it really affects me. [more..]

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