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Living with Interstitial Cystitis

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Continuing symptoms Of cystitis
by: Jennifer on Wed, Mar 05 2008
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I was diagnosed wtih intersitial cystitis when I was about 17, right after my son was born. I am now 36 y.o. I have had extreme, though less bouts of pain and each time all urinalysis show lack of infection, though blood in urine occurs occasionally.

When I has cystoscopy done (where they look into bladder with scope the doc said my bladder had extensive ulcers and I was in excrutiating pain when they filled my bladder with some saline fluid. They tried me on some experimental drugs that did not help. I have recently had increase in symtoms with pelvic pain, increased urges and up frequently during night. Most of time I only trickle which makes me so angry since It feels like I am going to explode.

I had having to have to have a bathroom nearby at all times and the thought of camping….without public restroom in my tent…! thats another story. I have noticed increased symptoms also since I have had my last child a year and half ago. I am only 36 years and can’t jump on trampoline without peeing my pants. I know there are new meds out there and I have not taken any in long time. If anyone has any solutions or advice for me I sure would appreciate it.


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Comments
  1. Sat, Apr 05 2008
    My post of March 13,2008 stated that I have been free of pain and frequency for five years. I do not know how that got there but I have only been on m...Read
  2. Sat, Mar 29 2008
    I thought I read that they can repair bladder ulcers through laser surgery. That should be something to consider -- get plenty of opinions first and i...Read
  3. Thu, Mar 13 2008
    You did not mention whether you had been on the diet recommended for IC I never eat or drink anything that is not allowed and I am on Elmiron (full ...Read

March 2008

  • botox and cystitis - by E - (Mon, Mar 31 2008)
    I had botox put into my bladder six months ago for I.C and it is the best thing i have ever done, i can now lead a normal life and am due my check up last day of march. [more..]
  • After 4 Yrs of IC Pain… - by Terri - (Thu, Mar 27 2008)
    And very poor support from Kaiser Permanente Urologists of Denver.. I finally hired one of Denver’s premiere “private” Urology Specialists to gain the proper IC diagnosis… Denver Kaiser Urologists didn’t care if I had an IC Diagnosis…! [more..]
  • Was healthy until … - by ddscrazy - (Wed, Mar 26 2008)
    I had a hysterectomy and then got a hernia from doing to much afterward.Had hernia repair with mesh in2005 thenin 2006 had to have mesh taken out,repair hernia again and another mesh put in, still havong prroblems with the mesh and now have been diagnosed with I.C. [more..]
  • Living with IC. - by AMG - (Mon, Mar 17 2008)
    I am a 27yr old female that was diagnosed with IC 7 years ago. I have seen 8 different urologists,some at the best hospital’s in Boston that specialize in IC. [more..]
  • IC - by VF - (Mon, Mar 17 2008)
    I was finally diagnosed with IC after years and years of being mis diagnosed. I am only 26 and it has taken over my life. Some days are good..some are bad and most of them are bad. [more..]
  • Not the fairytale begining… - by Elizabeth - (Wed, Mar 12 2008)
    I got married in October 2007 to an American soldier who had just spent his second tour in Afghanistan. While he was gone I was experiencing urgency and frequency as I have for the past ten years. In early January 2008 my symptoms became unbearable. [more..]
  • IC Headache - by Ebony - (Thu, Mar 06 2008)
    For the last few years I had been struggling with sharp painful abdomen pains and everytime I would go see my OB-GYN, he would run test and evrything always came back negative. So finally last year after he found a cyst on my ovary he did a laprascopy and notice adhesions. [more..]
  • HELP - by NANCY - (Wed, Mar 05 2008)
    I HAVE HAD IC FOR ABOUT 10 YEARS AND IT SEEMS THAT EACH DAY IT IS GETTING WORSE. I HAVE TRIED EVERY MEDICINE OUT THERE AND NOTHING SEEMS TO WORK. [more..]
  • Continuing symptoms Of cystitis - by Jennifer - (Wed, Mar 05 2008)
    I was diagnosed wtih intersitial cystitis when I was about 17, right after my son was born. I am now 36 y.o. I have had extreme, though less bouts of pain and each time all urinalysis show lack of infection, though blood in urine occurs occasionally. [more..]
  • IC and all ages - by Brooke - (Wed, Mar 05 2008)
    As i was reading these stories of other people having IC I realized many of you all are older with kids and all. I decided to write my story and show younger people they are not alone either. I am a 17 year old girl that has IC and it really affects me. [more..]

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