Living with Interstitial CystitisThis section is a place to share stories about Living with Interstitial Cystitis Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Continuing symptoms Of cystitis I was diagnosed wtih intersitial cystitis when I was about 17, right after my son was born. I am now 36 y.o. I have had extreme, though less bouts of pain and each time all urinalysis show lack of infection, though blood in urine occurs occasionally. When I has cystoscopy done (where they look into bladder with scope the doc said my bladder had extensive ulcers and I was in excrutiating pain when they filled my bladder with some saline fluid. They tried me on some experimental drugs that did not help. I have recently had increase in symtoms with pelvic pain, increased urges and up frequently during night. Most of time I only trickle which makes me so angry since It feels like I am going to explode. I had having to have to have a bathroom nearby at all times and the thought of camping….without public restroom in my tent…! thats another story. I have noticed increased symptoms also since I have had my last child a year and half ago. I am only 36 years and can’t jump on trampoline without peeing my pants. I know there are new meds out there and I have not taken any in long time. If anyone has any solutions or advice for me I sure would appreciate it. Comments
March 2008
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