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Living with Interstitial Cystitis

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Living with Interstitial Cystitis


by: Karen on Sun, Sep 30 2007

I was diagnosed with Interstitial Cystitis 8 years ago at the age of 35. I had the urgent need to empty my bladder every 5 minutes without getting relief. I started to get low pelvic pain (at childbirth I had a separation of the symphasis pubis) and was getting nausea.

Urine tests were always negative and after a number of doses of antibiotics I was referred to a urologist Endep 10 was prescribed (which made me extremely drowsy) and had DMSO. DMSO immediately allowed me relief and am finding Endep 10 (Amitriptelene) controls the symptoms. I am usually controlling it with 1 tablet a day - when I have flare-ups I take 2 tablets a day.

Stress appears to be the main thing that causes my flare-ups. I immediately feel pain in the pelvic area.

I have also found Endep 10 has been great for my asthma. I use to take asthma medication every day and now I only need to take it when I have a bad virus. Endep has been good in giving me a good night sleep due to its sedative effects. It doesn’t affect me during the day now as my body has adjusted to the medication.

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September 2007

  • Living with Interstitial Cystitis - by Karen - (Sun, Sep 30 2007)
    I was diagnosed with Interstitial Cystitis 8 years ago at the age of 35. I had the urgent need to empty my bladder every 5 minutes without getting relief. I started to get low pelvic pain (at childbirth I had a separation of the symphasis pubis) and was getting nausea. [more..]
  • Finding the problem! - by Victoria - (Thu, Sep 27 2007)
    My pain started the summer before I turned 18, and my first thought was a UTI However, because I wasn’t 18 yet and didn’t want my parents to find out I was sexually active, I didnt say anything for 4-5 months. When I finally saw my OBGYN, she diagnosed me with a UTI and gave me antibiotics. [more..]
  • IC or something else? - by KT - (Thu, Sep 20 2007)
    I started having severe pelvic pain a year ago. After a few months of different medications and scans, my gynecologist did a test in his office and said that I had IC. Went to the urologist who started me on Elmiron. No change. [more..]
  • Livin With IC & Im so Young Why Me ! - by Mandy G - (Wed, Sep 19 2007)
    Hi, My name is Mandy I am 19 yrs old , I was recently diagnosed with IC & since I was very young Ive had alll of the symtoms but my doctors could never tell me what exactly ! Its very painful & very draining …. [more..]
  • disorderly disorders - by B. S. W. - (Mon, Sep 17 2007)
    I was diagnosed with IC after a cystoscopy Shortly after, I began tingling all over my body. I was also experiencing severe burning pain not only in my bladder, but my back. I have shortness of breath, also. Unfortunately I have been diagnosed with asma [asthma], sleep apnea, fibromyalgia, chronic fatique syndrome, gastritis and barret’s esophagus. [more..]
  • Living with IC for 10 yrs - by A.V - (Fri, Sep 14 2007)
    I feel everybodys pain. My DR’s kept giving me antibiotics, so finally I went to a specialist at the University of MD, paid with my own money and he diognosed me. [more..]
  • Relief from IC - by Angie - (Fri, Sep 14 2007)
    I have found relief from IC by using D-Mannose. It can be bought from health food stores or online. I no longer need to have bladder injections. [more..]
  • Single parent barely living with IC - by donna - (Fri, Sep 07 2007)
    I was 41 when the symptoms got really bad. Looking back I had been having bladder pain on and off for a while, especially before my period. [more..]
  • Interstitial Cysititis- The Joke Of The South - by Terry - (Thu, Sep 06 2007)
    I had a severe car wreck in June of 2003 while I was oarked at Wal-mart. After visiting my son on his first day at working for them, I got back in my car, the gas pedal became stuck and it accerated to around 70 miles an hour, [more..]
  • Living With Interstitial Cystitis - by Nathalie - (Thu, Sep 06 2007)
    At the beginning of my colleges Year, I was experiencing severe pain in the bladder and pelvic. I was going to the washroom around 40 times a day, most of the time was at night. I failed my exams because I couldn’t hold it in and had tp run to the washroom every 20 minutes. [more..]
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