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This section is a place to share stories about Living with Interstitial Cystitis
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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Livin With IC & Im so Young Why Me !
by: Mandy G
on Wed, Sep 19 2007
Hi, My name is Mandy I am 19 yrs old ,
I was recently diagnosed with IC & since I was very young Ive had alll of the symtoms but my doctors could never tell me what exactly ! Its very painful & very draining …. I wish more ppl knew about IC its not welll known I wish more could be done . I wish I could find some more info on medication & I feel soo lost  ! I don’t think I should give up but thanks to my parents support it has helped me get through the rough days … But its hard not havin someone who rly understands what your going through some of my family & friends haven’t rly been here for me and that rly hurts alot !
Comment on this
Comments
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Wed, Sep 26 2007
I'm 18 and was diagnosed with the same thing. It's pretty scary, but my doctor put me on amitriptylin, which is an anti-depressant. I didn't want to t...Read
September 2007
- Living with Interstitial Cystitis - by Karen - (Sun, Sep 30 2007)
I was diagnosed with Interstitial Cystitis 8 years ago at the age of 35. I had the urgent need to empty my bladder every 5 minutes without getting relief. I started to get low pelvic pain (at childbirth I had a separation of the symphasis pubis) and was getting nausea.
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- Finding the problem! - by Victoria - (Thu, Sep 27 2007)
My pain started the summer before I turned 18, and my first thought was a UTI However, because I wasn’t 18 yet and didn’t want my parents to find out I was sexually active, I didnt say anything for 4-5 months. When I finally saw my OBGYN, she diagnosed me with a UTI and gave me antibiotics.
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- IC or something else? - by KT - (Thu, Sep 20 2007)
I started having severe pelvic pain a year ago. After a few months of different medications and scans, my gynecologist did a test in his office and said that I had IC. Went to the urologist who started me on Elmiron. No change.
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- Livin With IC & Im so Young Why Me ! - by Mandy G - (Wed, Sep 19 2007)
Hi, My name is Mandy I am 19 yrs old ,
I was recently diagnosed with IC & since I was very young Ive had alll of the symtoms but my doctors could never tell me what exactly ! Its very painful & very draining ….
[more..]
- disorderly disorders - by B. S. W. - (Mon, Sep 17 2007)
I was diagnosed with IC after a cystoscopy Shortly after, I began tingling all over my body. I was also experiencing severe burning pain not only in my bladder, but my back. I have shortness of breath, also. Unfortunately I have been diagnosed with asma [asthma], sleep apnea, fibromyalgia, chronic fatique syndrome, gastritis and barret’s esophagus.
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- Living with IC for 10 yrs - by A.V - (Fri, Sep 14 2007)
I feel everybodys pain. My DR’s kept giving me antibiotics, so finally I went to a specialist at the University of MD, paid with my own money and he diognosed me.
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- Relief from IC - by Angie - (Fri, Sep 14 2007)
I have found relief from IC by using D-Mannose. It can be bought from health food stores or online. I no longer need to have bladder injections.
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- Single parent barely living with IC - by donna - (Fri, Sep 07 2007)
I was 41 when the symptoms got really bad. Looking back I had been having bladder pain on and off for a while, especially before my period.
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- Interstitial Cysititis- The Joke Of The South - by Terry - (Thu, Sep 06 2007)
I had a severe car wreck in June of 2003 while I was oarked at Wal-mart. After visiting my son on his first day at working for them, I got back in my car, the gas pedal became stuck and it accerated to around 70 miles an hour,
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- Living With Interstitial Cystitis - by Nathalie - (Thu, Sep 06 2007)
At the beginning of my colleges Year, I was experiencing severe pain in the bladder and pelvic. I was going to the washroom around 40 times a day, most of the time was at night. I failed my exams because I couldn’t hold it in and had tp run to the washroom every 20 minutes.
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