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This section is a place to share stories about Living with Interstitial Cystitis
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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disorderly disorders
by: B. S. W.
on Mon, Sep 17 2007
I was diagnosed with IC after a cystoscopy. Shortly after, I began tingling all over my body. I was also experiencing severe burning pain not only in my bladder, but my back. I have shortness of breath, also. Unfortunately I have been diagnosed with asma [asthma], sleep apnea, fibromyalgia, chronic fatique syndrome, gastritis and barret’s esophagus. I also have a small brain tumor on the left side of my brain. All these disorders have medical documentation. I also have depression (DUH!). Is there anyone out there who just “fell apart”. It seems I was a hard working, productive part of society one minute and a physical wreck the next. I used to go to Curves or walk my dogs every morning BEFORE working eight hours a day, five days a week. I also have an Avon business. Now I can’t work and have a lot of trouble going up steps and walking up hills. I thought my aches and pains were just a part of getting older, but I am only 54. Is there any explanation medically how this could happen?
Comment on this
Comments
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Mon, Oct 15 2007
I understand exactly how you feel.
I am a mother of three kids, with a dog and working full time in stressful management position.
In April I fell apa...Read
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Sun, Sep 23 2007
hi i am 23 years old and feel like im going on 80. i have been to hundreds of doctors and have been like many messed around. all my tests came back n...Read
September 2007
- Living with Interstitial Cystitis - by Karen - (Sun, Sep 30 2007)
I was diagnosed with Interstitial Cystitis 8 years ago at the age of 35. I had the urgent need to empty my bladder every 5 minutes without getting relief. I started to get low pelvic pain (at childbirth I had a separation of the symphasis pubis) and was getting nausea.
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- Finding the problem! - by Victoria - (Thu, Sep 27 2007)
My pain started the summer before I turned 18, and my first thought was a UTI However, because I wasn’t 18 yet and didn’t want my parents to find out I was sexually active, I didnt say anything for 4-5 months. When I finally saw my OBGYN, she diagnosed me with a UTI and gave me antibiotics.
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- IC or something else? - by KT - (Thu, Sep 20 2007)
I started having severe pelvic pain a year ago. After a few months of different medications and scans, my gynecologist did a test in his office and said that I had IC. Went to the urologist who started me on Elmiron. No change.
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- Livin With IC & Im so Young Why Me ! - by Mandy G - (Wed, Sep 19 2007)
Hi, My name is Mandy I am 19 yrs old ,
I was recently diagnosed with IC & since I was very young Ive had alll of the symtoms but my doctors could never tell me what exactly ! Its very painful & very draining ….
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- disorderly disorders - by B. S. W. - (Mon, Sep 17 2007)
I was diagnosed with IC after a cystoscopy Shortly after, I began tingling all over my body. I was also experiencing severe burning pain not only in my bladder, but my back. I have shortness of breath, also. Unfortunately I have been diagnosed with asma [asthma], sleep apnea, fibromyalgia, chronic fatique syndrome, gastritis and barret’s esophagus.
[more..]
- Living with IC for 10 yrs - by A.V - (Fri, Sep 14 2007)
I feel everybodys pain. My DR’s kept giving me antibiotics, so finally I went to a specialist at the University of MD, paid with my own money and he diognosed me.
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- Relief from IC - by Angie - (Fri, Sep 14 2007)
I have found relief from IC by using D-Mannose. It can be bought from health food stores or online. I no longer need to have bladder injections.
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- Single parent barely living with IC - by donna - (Fri, Sep 07 2007)
I was 41 when the symptoms got really bad. Looking back I had been having bladder pain on and off for a while, especially before my period.
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- Interstitial Cysititis- The Joke Of The South - by Terry - (Thu, Sep 06 2007)
I had a severe car wreck in June of 2003 while I was oarked at Wal-mart. After visiting my son on his first day at working for them, I got back in my car, the gas pedal became stuck and it accerated to around 70 miles an hour,
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- Living With Interstitial Cystitis - by Nathalie - (Thu, Sep 06 2007)
At the beginning of my colleges Year, I was experiencing severe pain in the bladder and pelvic. I was going to the washroom around 40 times a day, most of the time was at night. I failed my exams because I couldn’t hold it in and had tp run to the washroom every 20 minutes.
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