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This section is a place to share stories about Living with Interstitial Cystitis
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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Living With Interstitial Cystitis
by: Nathalie
on Thu, Sep 06 2007
At the beginning of my colleges Year, I was experiencing severe pain in the bladder and pelvic. I was going to the washroom around 40 times a day, most of the time was at night. I failed my exams because I couldn’t hold it in and had tp run to the washroom every 20 minutes.
What was worse was that the doctors didn’t believe me. They ran several tests like ultrasounds and urine test. Everything came negative, so they figure there was nothing wrong with me. Finally after three years of suffering and many visits to the emergency, I found an urologist and he performed a cystoscopy I am not sure if that the right spelling, but they scope your bladder, and he told me that I had IC
He sent me to the hospital to get Heparin treatment. What a joke…. What was worse is that the nurses couldn’t put the catheters in me. They would go through 5 catheters before they got it right. Since I’ve been diagnosed with IC I’ve gone to the hospital many times because I couldn’t void. Each time the doctors would leave the catheter in me for 3-4 days each time. My Urologists is going to perform surgery on my bladder very shortly. So I hope they will come up with something better.
Comment on this
Comments
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Fri, Sep 07 2007
Keep us posted on what happens with the surgery. I just found out I have IC through surgery. I'm a 23 year old male and have had problems for about a ...Read
September 2007
- Living with Interstitial Cystitis - by Karen - (Sun, Sep 30 2007)
I was diagnosed with Interstitial Cystitis 8 years ago at the age of 35. I had the urgent need to empty my bladder every 5 minutes without getting relief. I started to get low pelvic pain (at childbirth I had a separation of the symphasis pubis) and was getting nausea.
[more..]
- Finding the problem! - by Victoria - (Thu, Sep 27 2007)
My pain started the summer before I turned 18, and my first thought was a UTI However, because I wasn’t 18 yet and didn’t want my parents to find out I was sexually active, I didnt say anything for 4-5 months. When I finally saw my OBGYN, she diagnosed me with a UTI and gave me antibiotics.
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- IC or something else? - by KT - (Thu, Sep 20 2007)
I started having severe pelvic pain a year ago. After a few months of different medications and scans, my gynecologist did a test in his office and said that I had IC. Went to the urologist who started me on Elmiron. No change.
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- Livin With IC & Im so Young Why Me ! - by Mandy G - (Wed, Sep 19 2007)
Hi, My name is Mandy I am 19 yrs old ,
I was recently diagnosed with IC & since I was very young Ive had alll of the symtoms but my doctors could never tell me what exactly ! Its very painful & very draining ….
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- disorderly disorders - by B. S. W. - (Mon, Sep 17 2007)
I was diagnosed with IC after a cystoscopy Shortly after, I began tingling all over my body. I was also experiencing severe burning pain not only in my bladder, but my back. I have shortness of breath, also. Unfortunately I have been diagnosed with asma [asthma], sleep apnea, fibromyalgia, chronic fatique syndrome, gastritis and barret’s esophagus.
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- Living with IC for 10 yrs - by A.V - (Fri, Sep 14 2007)
I feel everybodys pain. My DR’s kept giving me antibiotics, so finally I went to a specialist at the University of MD, paid with my own money and he diognosed me.
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- Relief from IC - by Angie - (Fri, Sep 14 2007)
I have found relief from IC by using D-Mannose. It can be bought from health food stores or online. I no longer need to have bladder injections.
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- Single parent barely living with IC - by donna - (Fri, Sep 07 2007)
I was 41 when the symptoms got really bad. Looking back I had been having bladder pain on and off for a while, especially before my period.
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- Interstitial Cysititis- The Joke Of The South - by Terry - (Thu, Sep 06 2007)
I had a severe car wreck in June of 2003 while I was oarked at Wal-mart. After visiting my son on his first day at working for them, I got back in my car, the gas pedal became stuck and it accerated to around 70 miles an hour,
[more..]
- Living With Interstitial Cystitis - by Nathalie - (Thu, Sep 06 2007)
At the beginning of my colleges Year, I was experiencing severe pain in the bladder and pelvic. I was going to the washroom around 40 times a day, most of the time was at night. I failed my exams because I couldn’t hold it in and had tp run to the washroom every 20 minutes.
[more..]
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