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Living with Interstitial Cystitis

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Improper Diagnoses until IC Discovered
by: Ruth on Mon, Jul 02 2007
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I have had bladder problems since I was in grade school, and I’m 26 now. I had been to urologists in the past and all they told me after much testing was I had an overactive bladder Medications didn’t work and I had lost all hope. Days can be so bad that I pee every fifteen minutes in the evening. I had no clue about IC until one day on the news I saw info about IC. Odd thing is I knew my bladder lining was messed up way before hearing about IC. I had told people I wished they could put a bag in my bladder, so it would catch the urine and not agitate me. After watching the special on the news I knew for a fact I had IC

Months later I saw a smart urologist and was diagnosed and given medication. I dont know how to explain how relieved I am to know the real problem!!! It’s been one week and I can already see a slight improvement with diet and medication. Oh the treatment I had at the doctors office was a miracle. She injected some fluid in my bladder and for the first time in forever I didn’t pee for four hours. That means allot from a person who pee’s every hour or more. Please help educate more people, so their frustration and pain can be managed.


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July 2007

  • ic patient - by E.L. - (Sun, Jul 29 2007)
    The ic symptoms started very hard and painful like two years ago. I was in emergency every month with pain and infection, the doctors did all kind of studies of my kidneys and they were ok. [more..]
  • I have had problems with my bladder for almost a year now - by JLA - (Sun, Jul 29 2007)
    I have had problems with my bladder for almost a year now. For months i was seeing the Doctor for bladder infections and they keep on giving me antibiotics until I eventually went to the hospital and the doctor told me I didn’t have a bladder infection and told me to be referred to an urologist [more..]
  • Bladder irritation - Water Quality. - by Chris - (Thu, Jul 26 2007)
    I have found that drinking distilled water does not irritate my bladder. Hard water, on the other hand, is so irritating that I know when the first drop enters my bladder. I have also found that fish oil suppliments can also be irritating. [more..]
  • a hell of a life - by r - (Wed, Jul 25 2007)
    this is going to be 3 years wiyh i.c. [interstitial cystitis]. Like every body else i didn’t know what it was. Took me 3 urologist in 10 months to find out that i had interstitial cystitis. One day i just wake up like that and since that day its been like that, some days better than others. [more..]
  • Improper Diagnoses until IC Discovered - by Ruth - (Mon, Jul 02 2007)
    I have had bladder problems since I was in grade school, and I’m 26 now. I had been to urologists in the past and all they told me after much testing was I had an overactive bladder Medications didn’t work and I had lost all hope. [more..]

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