Healthcommunities.com
Home Search SiteMap Forum Store Physician Board

Living with Interstitial Cystitis

This section is a place to share stories about Living with Interstitial Cystitis

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

You may also Help others by sharing your story.

To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.


Losing hope.
by: N. Martin on Wed, Apr 18 2007
Facebook Twitter

I got diagnosed with Interstitial Cystis three years ago, my senior year of high school. Basically my Dr.s thought I was having recurrent urinary tract infections and after several courses of anitbiotics were unsuccessful, we did the diagnosing for Interstitial Cystitis

I have tried basically all of the medicines that are out there, along with all of the treatments including instillations, hydrodistention, Elmiron, etc. I have been passed along from Dr. to Dr. with them not knowing what else to do. I recently underwent a Hydrodistention to basically see if the Elmiron was working, and my bladder has only gotten worse. It’s very disappointing. It affects my everyday life and having to deal the chronic pain itself is very aggravating.

I have had to quit jobs because of my pain and postpone things that I want to do with my life because I know I cannot rely on my bladder. If anyone out there knows of anything, anything at all, that might help please let me know. I’m only 21 years old and I’m just praying that it doesn’t get worse.
Facebook Twitter

Comment on this

Comments
  1. Fri, Jun 19 2009
    i also found that fish oil vitamins are anti-inflammatory, i just started taking them a month ago, I haven't noticed the full effects of it, but I fee...Read
  2. Fri, Jun 19 2009
    I was also diagnosed my senior year of high school, in 2006, after struggling with increasing symptoms four about 5 years. And all of the conditions ...Read
  3. Fri, Jun 19 2009
    I was also diagnosed my senior year of high school, in 2006, after struggling with increasing symptoms four about 5 years. And all of the conditions ...Read
  4. Wed, Aug 29 2007
    i know how you feel i'm 14 and it's really hard to go to school and sit through classes i don't want to go anywhere with my friends all the medicines ...Read

April 2007

  • Dealing with IC one day at a time… - by Beth K - (Mon, Apr 30 2007)
    I was diagnosed with IC after a bladder scope and biopsy in 1999. Before I was referred to my urologist I had seen MANY doctors (and taken many antibiotics) who were convinced I had a UTI or gynecological problem. [more..]
  • Kimberley’s Story - by PD - (Tue, Apr 24 2007)
    My beautiful 24 year old daughter struggled with Interstitial Cystitis for several years before we could find any right path toward handling this painful condition. [more..]
  • ICD - by PSM - (Mon, Apr 23 2007)
    I had frequent bladder pain and doctors kept treating me for an urinary infection with no success. I was going to the doctors once a month for bladder pain. [more..]
  • MY STORY - DIAGNOSING INTERSTITIAL CYSTITIS - by ROBIN - (Fri, Apr 20 2007)
    I WAS HAVING SEVERE PAIN IN MY RIGHT SIDE FOR A YEAR AND A HALF DOCTORS COULD NOT TELL ME WHAT WAS WRONG WITH ME BUT TO TELL ME TO TRY THIS MEDICINE AND THAT MEDICINE AND NOTHING WORKED. [more..]
  • Losing hope. - by N. Martin - (Wed, Apr 18 2007)
    I got diagnosed with Interstitial Cystis three years ago, my senior year of high school. Basically my Dr.s thought I was having recurrent urinary tract infections and after several courses of anitbiotics were unsuccessful, we did the diagnosing for Interstitial Cystitis. [more..]
  • My IC - by Karie - (Fri, Apr 13 2007)
    I was diagnosed with IC about 6 years ago. Just thought I had a really bad bladder infection. Went to the doctor and there was no infection. I thought I was losing my mind. [more..]
  • From urinary tract infection to IC to Overactive bladder - by Suzanne - (Fri, Apr 13 2007)
    At age 30, I was diagnosed with an e-coli urinary tract infection That was after I had taken different antibiotics for four months and they could not find the right one so they finally did a culture and it was e-coli. [more..]

Archives:

  • 2009 January February March April May June July August September October
  • 2008 January February March April May June July August September October November December
  • 2007 April May June July August September October November December

    • The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer)
    printer friendly versionprint this email to a friend  email this AddThis Social Bookmark Button